Has any one ever heard of what sounds like William Pussington Wright disease or syndrome.

• Has any one ever heard of what sounds like William Pussington Wright disease or syndrome. - jami
  • Link with some syndromes. - Txczech
    • could it be.. - Rebekah
      • Wolff-Parkinson-White--2 f's. nm - Lifer

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Cannot locate anything that sounds like this anywhere in books or on line! 

Thanks so much!! 

Doc says it is a spastic paraparesis of the lower extremities, but I am unable to document this . . . is this how it is spelled?

TIA

There is no evidence of hydradenitis or ____ at this time. 

sounds like purativa ? cannot figure out what she is saying.  TIA

therefore chronic IBS disease.

You said it.... NOT me.

Can't

Yes I have, it was performed on my sister Caroline.

I believe this was a part of a step in a whole procedure performed by a team of Swiss doctors flown into Loyola University Chicago in 1981.  Normally a procedure is named after the doctor whom performs the "new" technique, but in the case of a team working on a patient with a chance of high mortality, which does survive.  In late 1979 my sister was diagnosed with hydrocephalus.  She was 16.  The neuron surgeon here in Chicago (more so Arlington Heights, IL) at Northwest Community Hospital consulted with doctors overseas in regards to the procedure as a temporary solution till they reviewed the case.  She was being considered for a new medical treatment for hydrocephalus.  Most children diagnosed with hydrocephalus die at a young age prior to this time as there was no long term treatment.  Those who developed this later on, mostly in their teens is a result of growth spurs from puberty, or a tumor located on or near the Cerebral Aqueduct (of Sylvius).  This is what my sister’s condition was.  The tumor was slow growing, and located above the pituitary gland and near the Cerebral Aqueduct (of Sylvius).  The Doctor not understanding the procedure totally as explained in the overseas phone consult, mis-preformed the procedure.  Instead of entering the skull from the occipital (rear), he entered from the right side of the brain.  No noticeable damage at the time was done.  However, on April 1st, 1981, my sister after having a shunt implanted in her brain by the same doctor, whom performed her first surgery to relieve the pressure on the brain, had a stroke.  This now cause alarm as we believed she was out of danger.  She was rushed to Loyola University Chicago, where after extensive testing and numerous doctors overseeing her condition, they consulted with the doctors whom where developing the Cerebral Shunt for hydrocephalus.  The team from Switzerland were flown in and looked over all the tests and scans at that time, and in about 15 minutes or so, they say the problem was, a tumor in the previously mentioned spot.  The tumor was missed by my sister’s first doctor.  He also in his notes on the first surgery stated his entry point (on the right side of the skull) and that there was no blood in the cerebral fluid when drained to relieve pressure.  Although, the latest scans from when she was recently admitted, showed damage in the area of the entry point on the right side of the brain, a blood clot.  Not to mention, the shunt was laid on top of the tumor.  In all the doctors from Switzerland removed the tumor, corrected the position of the shunt, and reinserted the drainage tube from the shunt that had also become wrapped around my sister appendix the previous November which caused her to have Appendicitis.  For 2 years our family went thru hell from 1 bad doctor who most like was better off in a butcher shop.  I remember all this as I was young and my parents, mostly my mother, kept me around since it was the only way I was able to see her and my sister and father.  My memory, and I paraphrase what was said when my sister was released, that they (the doctors from Switzerland) would work on making sure that in the future, the procedure for relieving pressure on the brain from cerebral fluid would be understood clearly that the entry point would be from the rear, and in between the left and right lobes of the brain.  To my surprise, when I was online and looking up my family’s name, that the Kocher’s Point was the exact procedure that was to be made clear for other doctor’s.

In the end, The Doctor was sued, and lost his medical license, and ordered by the court not to pursue a career in the medical field and was barred from and contact from a position he would dispense any and all medical assistance.  My sister is still alive went to college, got married and has had 5 children even though she was advised to never have children due to the radiation treatment for the cancer/tumor, and the pressure on the shunt from labor.  In years past she has shown that her short term memory is weak and sometimes forgets things if she does not repeat what is said to her.  She is now in 2009, 46 years old.

Could one of these S3s be F3? or something with a similar s/l? I can't document F3 though. New doc, but clearly states above.

Thanks for any help.

xx

Are there any ortho MTs who can give documentation regarding the above, in so far as, what distinguishes one from the other?  Thanks in advance.

Pt has has pink raised ciruclar lesions on trunk and distal extremities. 

Dx is S/L En Saint Reole disease.  Any body know what the heck this is?

Thanks!

Doctor says:  She was diagnosed with this disease 1 year ago.  She was wheelchair bound until June. 

Thank you for any help!