It has a lot of uses, another being for seizures...
Posted By: TM on 2006-09-25
In Reply to: I thought Neurontin was a pain medication - confused
My doctor suggested I try it when nothing else worked. I had to start at a real low dose because it made me very sleepy. I am on 300 mg, which is still a low dose, but that is the dose that seems to help the most without the side effects. I also take Wellbutrin too though. Every time I would see a doctor, they always tried just one pill. Finally a psychiatrist told me that one pill wouldn't work because I have several different things going on, so a combination of meds would be more appropriate. I had already been on the Wellbutrin for months. She at that point added the Neurontin. I could tell a difference right away.
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seizures
My daughter had seizures at 9 months old. (She has special needs) She is now 21 and has been seizure-free for over ten years. No meds.
First, while a baby is having a seizure, you should put them in a safe place, like the crib or on the floor on a blanket. Somewhere where they are safe and will not hurt themself and lie him on his side so that any saliva from his mouth can drool out. I always tried to time the seizure. Sometimes, it takes trying different medications to find the one that works. Seizures are difficult to diagnose. Any fever associated with them?
Keep a log book on when he has the seizures. Good luck and if I can help in anyway, please let me know. I know seizures can be terrifying to watch.
My son HAD seizures.....(SM)
When he was five or six he was eating a granola bar and all of a sudden he couldn't talk and he started drooling. I called 911 and the paramedics came. They thought he had choked.
The second incident happened when he was playing a video game. This time his left cheek started twitching, he couldn't talk, and again was drooling. I called the pediatrician and they thought it was related to playing the video game. I took him to the ER and this is what the doctor said (I will never forget this)...."it is not a seizure" and he jerked his arms and said "this is a seizure." He was describing a grand mal seizure. My mom is a nurse practitioner so I knew from her that there was more than one kind of seizure (I wasn't an MT at the time).
I then went to his pediatrician who referred us out to a pediatric neurologist. The neurologist felt it was a partial simple seizure and ordered all of the usual tests, which confirmed the diagnosis. He was put on Depakote 100 mg and had only one more seizure in two years. We tried taking him off the Depakote during the summer (while he wasn't in school) and he had a seizure. He then was on Depakote for another year seizure free. We took him off the next summer and he has never had another seizure. Some people use the term he grew out of the seizures, but actually his brain re-routed around the affected area in his brain that was causing the seizures. He is now 13 and he is still seizure free.
My advice is to seek a second opinion. It never hurts. You can even seek a third opinion. Different doctors have different ways of treating patients. Research his disease on your own and also look for alternative treatments other than the norm. I know my son's seizures weren't grand mal, but they scared us so. We are so thankful his body corrected itself and he no longer has them. I'm cautious with him injuring the area of his brain that was damaged and always tell his coaches and teachers about it just in case.
I wish you and your family strength and courage.
DSR for seizures.
DSR: The patient died of seizure well without complication.
Dictated: The patient tolerated the procedure well without complication. 
TRILEPTAL AND SEIZURES
My 20 year old daughter was just diagnosed with partial seizures. We could not wake her up on Sunday morning and had to call the paramedics. My question is does anyone take Trileptal and is there side effects or are you having success with it. Are you able to drive? My daughter says her lip goes numb when she first takes it. I have done research but I would like to know if anyone had first hand experience with it. THANKS IN ADVANCE.
Many thanks to my OP on infant seizures. sm
I apologize for not getting back to you sooner, but I went on a mini-vacation the afternoon that I posted my original message and lo and behold, I found things to do that didn't have to do with being on my computer.
One thing I'm happy to report is that my grandson laughed the other day. First time we've heard him laugh in a couple of months, which was before he started having the seizures.. My 11-year-old daughter has a stuffed monkey that makes kissy noises and then squeals like a monkey when you push a button. We tried it and he smiled, laughed and kicked his little feet.
He doesn't just sit and stare like he used to, so I guess we're making progress.
At any rate, thank you all so much for your input. It is very much appreciated.
seizures - 2 hours long
My daughter had grand mal seizures since age 18 months (after her immunizations of course). She had them until she was 4 1/2 and then they restarted at age 12 (when we were living near a nuclear plant) - University of Wisconsin has the best ped neuro program, Harvard has another. The child does not suffer normally -- onlookers suffer more than they do if it is any consolation. My experience with the entire medical field of neurologists has been substandard -- look until you find one you trust. Beware.
Could use some personal input on infant seizures. sm
If any you are dealing with or have dealt with seizures with infants, I could sure use some help.
My grandson is now 8 months old. He started having seizures a few months ago. (Incidentally after having the usual immunizations). We all knew something was "wrong," but all that he did at first was roll his eyes back and was referred to pedi ophthalmology and was diagnosed as normal.
Then he started rolling his eyes and tensing his whole body up and then it got worse. He stopped smiling, stopped making eye contact, etc. It wasn't until he had a seizure in front of the pedi that something was done. Supposedly.
After being admitted to the hospital and undergoing EEGs, he was diagnosed with seizures and sent to a pedi neuro specialist. He's on meds and he's better, but he still has them and there is no way to pinpoint why, where or when he is going to have them.
The poor little guy just suffers so during his episodes. There is no warning. He just starts crying in a strange cry. If I have him with me, I go grab him, hold him close and talk to him and rub his little head and tell him "almost done, almost done." He cries and I cry and then 2 minutes later it's all over.
I hate this. It breaks my heart, as well as his mom and dad's.
Sorry to be so long, but any input outside of a medical professional standpoint would be helpful and I would very much appreciate it.
Thanks
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