Sorry about your diagnosis, have you
Posted By: KittyC on 2007-01-07
In Reply to: RE sugar in diet - Sharon - MS sufferer
perhaps listened or read anything regarding Montel Williams? I know he has suffered for years now with the same and talked extensively regarding this. I think perhaps he might have written a book but not 100% about that. Talking about the flour, I started to cook something about 4 months ago and not a drop of flour here in the house. My hubby cooks and uses none and I am the only 1 who has bought sugar and only for the coffee I have- 1 cup a day. I am not diabetic but have suffered extensively with leg pain (drs diagnosed neuropathy??) but as far as treatment, nothing. Sometimes it wakes me at night, only at night, never leg pain during the day. My hubby also tries to buy organic if possible, use very little salt, mostly herbs and spices and used to drink the sodas but after our marriage a few years back, came off those eventually and water now. I do drink some occasional milk as I really love that. Gosh, I have some honey in my kitchen, have tried that in coffee before but just not the same. Don't know what else I can try... What kind of problems were you having when your MS diagnosed? I know this is usually a dx that comes in earlier life so I do not feel at all this is my problem but just wondering about yours and what do you do to alleviate some of the leg pain you talk about, i.e. heat, etc. Thanks
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My diagnosis...
When I told my doctor I needed testing, had all the symptoms of a thyroid problem. Your TSH should be, hmmm say around 5.5 and mine was over 1000 so very much a problem. I was called and told immediately to see an endocrinologist. You can, if not brought under control, suffer severe problems with hypothyroidism as in hyperthyroidism, either one can be potentially fatal. I recently (about 4 months ago) had a battery of tests done and a test that is very revealing of thyroid is a thyroid peroxidase- normal 0-34 and mine 283. I am on thyroid each and every day, even as this test taken. They at first thought mine Hashimoto thyroiditis which in itself very serious. Have been diagnosed since the late 90s and have the hair loss, weight gain, dry skin but then again, as you were talking about her behavioral problems, mine can go along with aging like hers might go along with being a teenager. I had a son who when becoming a teenager tended to withdraw, sullen but I expected that from a teenager. I think some might come with the territory.
diagnosis
I would say you are constipated....
carefully review your diet, medications and get your thyroid check....
imho....
I'm sorry to hear of your diagnosis. NM
x
I wonder if that is a correct diagnosis
Her symptoms sound more like what a couple of people I know experienced with cardiac arrhythmia. I don't know the exact diagnosis, but one of them was treated with ablation and is doing well, and the other had a pacemaker and defibrillator implanted and is doing well. These women were both in their 30s when they started experiencing symptoms.
I was a military wife for a long time - there are some good doctors in the military but they can be few and far between. I hope your friend will ask to be referred to a non-military cardiologist.
Melanosis coli diagnosis
Had the above diagnosis and the physician tried to emphasize that I took laxatives and should not- HOWEVER, the last time I took them was over 40 years ago after I had my child. Has anyone else been diagnosed with this and besides the laxatives, what else could cause this? I eat a lot of olives, drink coffee, thought about the things that possibly could be the cause but SHE insisted to leave the laxatives off. Anyone else have this?
You are right about people doubting the diagnosis
I went finally to a pain clinic where when I told the physician what another physician diagnosed, the pain clinic doctor threw his eyes up to the ceiling as if to say he did not believe. I tell you what I take for symptoms like you describe (ran out this past week and I could tell the difference in a couple of days), that is over the counter glucosamine chondroitin- cheap, can get at Walmart. I too have the creaky joints, knees popping, so I know it helps those. As far as the neck pain, etc. it might be fibro- I am having thoracic injections done pretty soon- had some others done at pain clinic- if you can self-refer or get referred to pain clinic - that probably would be best because lots of others give you the runaround, don’t believe and don’t even think it a true malady. I would wish them the same except I do not wish this much pain on my worst enemy.
If you're challenging to diagnosis...
You'll need to have an independent evaluation done by a doc willing to submit the proper paperwork and possibly attend the hearing. I wouldn't bother with it if the plan is agreeable, though.
Endocring diagnosis - (___) toxicosis?
The doc says "Endocrine Diagnosis -- s/l grey phara toxicosis ???? Have no clue
Did you have contact with your friend after her diagnosis?
I ask because if she was your friend and you knew she had pancreatic cancer, why wouldn't you know her husband left her? I would imagine if a friend of mine was diagnosed with pancreatic cancer, I would visit her and call her up until she passed. I would probably know if her husband left her.
Just curious.
but I do believe fibro can be a catchall diagnosis when docs can't (sm)
figure out what's wrong with you!
Why would you give organs to others if you had the diagnosis of meningitis?
I find this terribly strange- personally I would never have wanted them donated out- meningitis can be a killer itself.
You didn't ask for a diagnosis. You asked for a prognosis. nm
x
Anybody watch Mystery Diagnosis on Discovery Health?
Amazing how people go for YEARS without the correct diagnosis or being treated for something they don't have.
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