RE: Conner
Posted By: RettaB on 2007-12-02
In Reply to: Conner update! - DebD
DebD: I sent you an email
RettaB
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Conner Needs Hats
A boy from Indiana could use a boost. Conner was found to have a rare genetic disorder called NEMO, diagnosed at the National Institute of Health. He is currently in Cincinnati Children's Hospital trying to recover from a bone marrow transplant.
Conner's spirits are pretty low right now. Chemo made him lose his hair and steroids have bloated him to the point where he will no longer look at photos of himself or in the mirror. He is one in a set of triplets and has a younger sister. He's pretty homesick right now, his kidneys are not functioning as they should and he's just sick of being sick.
To help boost Conner's spirits and give him something to look forward to, as well as something to do, I am trying to get hats sent to him from every state and beyond if possible. You can go to the link posted for more info on how to do this, and hopefully I have included this link correctly! Conner will have a wall map of the U.S. and will be able to mark where the hats come from.
Thanks everyone!
http://hatsforconner.blogspot.com
Hats to Conner
Alabama Hat on the way tomorrow, Roll Tide....God Bless him.
Conner update!
Hi PAMT-MDM
I've been hesitant to post updates on here about Conner because there's never much of response to my posts, which makes me feel a bit awkward. I don't want to seem like I am pestering.
Conner went HOME the week of Thanksgiving! I'm sure that was their best Thanksgiving ever despite Conner still being in isolation somewhat. The Journal & Courier newspaper out of Lafayette as well as the TV news covered Conner's homecoming. His neighborhood was lined with friends and family welcoming him back as his mom drove him back home to Indiana from Cincinnati Children's Hospital where he had been a patient for over 100 days.
His mom has created a new web site at:
http://www.caringbridge.org/visit/smithkids
where you can check out how he is doing and view some photos. There's a photo of him with his triplet brothers and his sister and the Thanksgiving turkey!
http://hatsforconner.blogspot.com/
is updated periodically. There is a list on there of only the hats I know have been sent, but I think Conner has received more as his mom made mention of it a couple of days ago on their site.
His mom is always asking for people to sign their guest book as their whole family enjoys reading the entries.
Thanks for asking about Conner!
Conner: NO MOR HATS!!!
Hi Everyone -
For those of you who took the time to send hats to Conner, the boy who had the bone marrow transplant, THANK YOU!!
Conner's mom has requested no more hats be sent as he now has enough to never have to buy a hat again!
Please continue to support Conner by signing his guest book. It means a lot to him and to his family knowing there are so many who care.
You guys are all great for coming through and taking the time to learn about Conner.
Just wondering if there was an update on Conner
The teenager who was getting hats from all over. Haven't seen anything posted lately and wondered how he was doing.
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