Polycystic kidney disease....
Posted By: RadtransToo on 2007-03-23
In Reply to: Anyone with renal cysts and are they - Jessica
My husband was just diagnosed with this. It is the mostly common inherited disease there is and many people don't know they have it. It generally leads to renal failure later in life. There is a new clinical trial beginning right now for a drug that is supposed to shrink the cysts. This is the third phase and so far it has been extremely successful. The clinical trial is at Johns Hopkins University in Baltimore. Let me know if you need more info.
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Incidental finding, polycystic kidney disease
Not something that I would have liked to hear but being as older, told the doctor maybe can outlive the cysts, i.e. having to be on dialysis and/or dying because of them. I had an MRI of another region and those picked up, told someone in my family had to have and know of no one. The cysts I have can go anywhere in your body so they will watch them every few months, no abnormal lab tests or the like, found those about 2 years ago. The kidney cysts are the only ones I know of.
That seems to be debatable even in the medical field. Disease or not disease?
things that could lead to diabetes and hypertension are true, they are still diseases and could obviously occur with or without staying away from known causes.
But for you to come here and say alcholism is "NOT" a disease is a little extreme and maybe should have been accompanied by IMO? That is my opinion anyway.
Please try not to worry. Are you sure that are not kidney SM
stones? My opinion is the hospital sent letter as a matter of protocol. When people are discharged from ER, they usually receive followup orders. Maybe they forgot.
Followup with PCP, but try not to worry. Monday will be here soon enough.
kidney surgery
I am facing kidney surgery in the very near future to cut out a urethral stricture from my single kidney (congenital). My doctor informed me this is a relatively common procedure but that it is not a surgery one can just bounce right back from. I'm just curious if anyone can tell me whether you've had this surgery or know someone who has, and know their recovery rate and prognosis. He also told me there is a 2% to 3% chance this could not take and the surgery might have to be repeated. My doctor told me one month after the surgery I will have to have a second surgery to remove a stent that he will temporarily place. He said I will be in the hospital overnight (for the initial surgery) and then probably won't feel like doing my regular activities for at least two weeks. Thanks for any information.
My experience with kidney failure
Several years ago we lost a white shepherd to kidney failure. She was only 4. She spent about a week on IV fluids and seemed to come around some but was still weak when we brought her home. As soon as she starting eating again, even the special Eukanuba kidney diet, she went into failure again. We had to take her back in 2 days to have her put down. I was an absolutely hearbreaking experience to see her suffer. I feel for all of the owners dealing with it now.
The cause of her kidney failure was never really determined. The first question the vet asked me though was what kind of food I used. I had 2 other dogs at the time and they were fine, so probably wasn't the food. He did come to the conclusion that it was a "high tech rat poison" because they had another German Shepherd with the same problem. It was a police dog and had been intentionally poisoned. That dog made it through though.
My thoughts are with you and your kitty.
What does a kidney infection feel like? sm
I have had UTIs in the distant past but never a kidney infection....wondering if I have one now though.
My husband had a kidney stone
and as the doctor was explaining to me what they found and where it was and what they would do I made a comment that I understand completely and then asked a question. I don't remember the question but it included a medical term and the doctor said to me "oh, do you have medical experience?" and I told him that I was an MT who transcribes acute care. The doctor then laughed and said that by the looks of his reports that come back that he didn't think MTs had any medical experience and were just typing.
Yes, irritated me as well. I dont' know why people think we don't understand what we transcribe. Understanding is a huge part of the job.
liver, kidney and heart failure...
http://www.nlm.nih.gov/medlineplus/ency/article/003104.htm
A time of 5 years should not have caused kidney failure.
This is too short a time.
Did she have heart problems also?
I know people who drag along for 30 years until they finally succumb to organ failure.
Hydrationis what is needed here. Kidney failure is being prevented.
Cost is high but well worth it. One can also get IV drip with lactated ringers and do it yourself. Fluid is seeped into area between shoulder blades to be absorbed by puppy's body. One of mine needed a blood transfusion, both needed IV antibiotics. Five days in house is typical.
Friend in kidney failure, on dialysis now, said she could not understand "them" (ESLs)
I got a call last night from a friend who goes back over 40 years. She was in the hospital in kidney failure on dialysis. I was shocked. I knew she had diabetes and high blood pressure but had spoken with her the other day and she mentioned no problems then. I asked her had she been taken her medications like she should have and she said well, maybe not really like I should have and then she told me she really could not understand her physicians, they were foreign and she did not know maybe just how bad off she really was. I am furious. I wish I had known the whole story. I asked "why did you not change doctors?" and her reply was, oh, I just didn’t. She is calm, submissive and I am the opposite, in your face and give me some answers. I have smoke blowing from my ears! This is an older woman in her 60s who now waits for a kidney who is not on the top of the list because of her other ailments. She does not know the process of getting a kidney but I know what the outlook is for her. How many more people do you think are out there who might not get the kind of medical help they need because of them not being able to understand these foreign doctors? Furious for me is an understatement.
It IS NOT a disease. The use of it causes disease but
alcoholism in itself is not a disease. My husband was also predisposed to it by *genetics* (his mother and father were also alcoholics). He should have had better sense than to ever pick up the first drink, but he didn't. Now, for the rest of his life he will have to battle with the fact that he is an alcoholic (albeit, a recovering alcoholic). He CHOSE to drink. He CHOSE to take the chance and it caught up with him. It's just like cigarette smoking. That's not a disease, but the effects of the cigarettes cause disease. If one is predisposed to something harmful, they need to take control of themselves and stay away from whatever causes the problems associated with it. Both of my parents are diabetics, so that predisposes me to diabetes. They are both hypertensive (as am I). I'm predisposed to have hypertension, but I have to use my common sense and stay away from things that could cause the hypertension to blossom into something much more serious. The predisposition to alcoholism has to be handled the same way. STAY AWAY FROM IT!!!!!
Does anyone have a dog who has Cushing's disease? sm
My mom and dad's daschund was diagnosed with Cushing's disease. She's 15 years old. She's going to have to be medicine for the rest of her life. I've read on a web site this can be fatal. Has anyone ever had any experience with their pet having this? thanks.
lyme disease
Friend's dog was chewing paws because joints were sore from Lyme disease.
Disease question
As someone in recovery for more than 9 years this is my take on it. Addiction (alcohlism) is a combination of nature (genetics) and nurture (environment). One can be predisposed to addiction but never know it if they never ingest the substance. Many people drink but not everyone is an alcoholic. Drinking the alcohol is a choice that one can control, but once an alcoholic or addict makes the choice to drink, they no longer have control over how their body reacts to it.
If classifying it as a disease is a way for health insurance companies to pay for treatment and healthcare for the alcoholic or addict, then that is fine with me. But it is NOT an excuse to drink and once one admits or realizes one is an alcoholic they ARE responsible for what happens after they take a drink.
To the original poster wife: The best way you can help your husband is to take care of yourself and your children through Alanon, Alateen and/or counseling. The only person YOU can control is YOU. Lives by example. Your husband just might find his own way to changing his life by watching you change yours.
thyroid disease
I have hypothyroidism and take Unithroid. I'm up to 150 mcg a day. The only thing I am sensitive to is hot and cold. My internal thermostat does not work well. No medication sensitivities though, but that does not mean much as each person is different. We all reactive diferently from each other. Good luck though. Hope things improve with this.
Foot-in-mouth-disease
At one time or another we have all suffered from it. Sometimes, things just pop out of our mouths before we have had a chance to edit them. What was probably a poor attempt at conversation turned out to be an embarrassing situation for both of you. Accept his apology and move on.
A lifer here, too. It used to be called a disease!
That really freaked me out on hearing that diagnosis. Cysts and pain come and go - supposedly we are to avoid chocolate and coffee/caffeine. yeah, right! No way! I do not do breast self-exams, and was also instructed not to do them as well by my OB/GYNs and surgeons, as we will always find a lump and then freak out. I have yearly detailed mammos - dozens of shots for surveillance. Had a cyst aspirated now and again, and have always been fine. In my 50s now and have gotten used to it - not lazy about it, but just not so afraid. Information is power! It is a very common "condition", by the way! We are all in good company!
...going on here, including a few disease processes. nm
s
My thirst is Sjogren's disease! sm
I am always, always and forever chronically thirsty, but I don't have the polyuria to go with it.
I have dry eyes, dry nose (to a point where it is usually pretty full of scabs), dry mouth with caries at the gumline. I have gastroparesis and proctalgia fugax which often go with Sjogren's just like the rest of it. Dry skin and feeling like you are drying out from the inside out is part of it. I even get a nasty, clay-like sludgy feeling in my mouth and throat from my stomach being too dry to digest.
It is misery and even better than a gallon of water a day doesn't fix the dry feeling, but it keeps my kidneys from shutting down from being dry.
Lovely huh?
My 13 y.o. niece has just been dx with Grave's disease. Does anyone here have any info or sm
advice on what I can tell my brother about this? They are such a precious family. Brother visibly upset over this because he has been disciplining her for behavioral problems, etc., when all along it's been here thyroid. They want to do radiation right away to help shrink it? Or possibly remove thyroid altogether. She is so pretty. I spent the summer with them and yes, she did act diff. from other 13 year olds, looked very developed for her age (to me), and her eyes weren't bulging to me. I'm so glad they caught it today. It sounded like she was in the early stages of shock with fever, shakiness, etc.
Anyone with experience in this? Thank you so much.
Every woman in my family has thyroid disease...
and only about half of them are overweight, so that's just another excuse. You really need to stop blaming other people for your weight problems and take control of your own situation. I too have hypothyroidism, but I am a size 6 and was only overweight when I was eating unhealthy and not exercising. If you're really only eating one meal a day, I can guarantee this is why you can't lose weight! Your body is probably holding onto everything you eat because you're starving it!! You absolutely need to eat 3 (small) meals a day and 2 snacks. There's a book called The 3 Hour Diet that can really help you with what you should be eating, how much and how often. You sound like a very angry person and like you don't want accept that you're responsible for your own health. Honestly, you're not overweight because of what the government does or doesn't do, it because of what you're doing to your body.
And the scariest part is, they then carry this disease
among many others without even knowing and spread them around.
absolutely. its a disease, and a super prevalent one also.
.
Absolutely, it is a disease, but one that a person can recover from if they
have the desire to be sober. Unfortunately, there is no test to tell you prior to your first sip of alcohol that you area an alcoholic and will suffer from this disease and hurt everyone, including yourself. Fortunately, however, there are steps to recovery and, albiet it not a cure, it does not have to debilitate you. I am a recovering alcoholic and have been for 13 years. My recovery started with admitting my problem and taking the necessary steps to change and find other ways to deal with my self-esteem, problems and anxieties other than a drink. Since my recovery I have not only become "sober" but a much better person and very serene with my life, which of course has made a very producitve member of society and not "disabled." I think someone who accepts disability based on their alcoholism has not only accepted their fate, but accepted its consequences and not willing to change. I really think that is very sad.
I studied the disease back in 98 when diagnosed
and thank goodness for the web!!! I continually get educated all the time from being online. I love it. Glad you're feeling well!!!! Attitude has much to do with it.....
Anyone with thyroid disease experience sensitivity
I have had thyroid disease for about 5 years now and am on Synthroid for it. I find that I cannot tolerate caffiene very well and narcotic/anlgesic medications, such as Novocaine make my heart race and make me feel so weirded out I can no longer tolerate this. I cannot even have a wisdom tooth pulled because of this.
Anywa, I thought it was just me but I recently read in a magazine that thyroid disease could cause sensitivity to medications. It would stand to reason once your thyroid levels were adjusted this would go away, but such is not the case with me. Does anybody else have this problem?
If you have a child with a life threatening disease
you possibly would think a little different about this issue. I do and saying full steam ahead.
Thank you for sharing that. Yes, thyroid disease left untreated can sm
be a very serious thing. I appreciate your response. Good luck to you!!
My daughter has hand, foot and mouth disease
She has 4 ulcers in her mouth and, of course, is in pain and won't eat anything. I put some cereal and milk in the blender this morning and she drank that okay, but her poor little mouth is really painful. We tried the saltwater rinses, but that didn't help. We have been using Orajel on the biggest sore, but was wondering if anyone has any other ideas for pain relief. She's been coping pretty good with the blisters on her hands and feet so far, but this is only the 2nd day. Hopefully, this will be over soon. Thanks for any help!
Check out celiac disease from gluten allergy
Many times it is mistaken for IBS - my grandson is being tested for this by GI doctor on the ball!
Received a dx today of fibrocystic breast disease. Painful lumps in my breast. Going for a mammo
towards the end of the month. Anyone have any info on this disease?
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