Need fibromyalgia info.

I know a lady who was just diagnosed with fibromyalgia.  She has been suffering for well over a year and now almost two years.  She has yet to break the pain cycle and feels that nothing will help her.  She currently spends most of her time in bed. 

I just wanted to know if there were any tips or treatments that have worked for people with fibromyalgia that might help her too.  So any information, books, etc. that you are willing to share would be much appreciated.  Thanks in advance!!!

• Need fibromyalgia info. - Chele
  • Here is an interesting site - Me

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I have had it for 25 years and it gets worse all the time.  The only time it didn't bother me was when I was pregnant (4 times!).  I feel like I have the flu all the time and I am tired and exhausted.  I also have arthritis and have had a hip replacement and need the other hip replaced now and I have degenerative disc disease and need spinal fusion.  It never goes away -- ever.  Stress doesn't matter and not being stressed doesn't change anything.  A lot of drs. think it is "all in your head" and many have told me that.  Some put me on antidepressants which helped the burning sensation a lot, but made me gain 50 pounds.   Sorry to hear you have fibro---it is very debilitating.  I work in downtown Chicago and have to walk 11 blocks from the train to work -- it is very hard.  I had my first hip replaced when I was 43 -- very, very unusually young. 

While transcribing a report recently I came across a website that discussed somatization disorder with regards to fibromyalgia and CFS.  I just did a Google on somatization disorder and it was the first website that came up.  It was very enlightening and I definitely going to check out my medical records and physician dictations to see if I have ever been classified as having somatization disorder when in fact I have fibro and CFS.  These are very different disorders, but fibro/CFS can be missed if a doctor is not well-versed in all 3 disorders.  I hate it thought that many doctors do not want to be forthcoming with your medical records - I have run into that more than once.  Well, I'm on a mission now -

I had low back surgery in June of 2006.  About 5 days after my surgery, I had a huge muscle ball up in my back.  Then everything went to pot.  I finally was sent to pain management and they diagnosed me with myofascial pain syndrome. 

I know the dx of fibromyalgia is very skeptical.  All I know is I feel like I have been run over by a truck.  My joints are killing me in my hips, knees and ankles.  They are constantly popping and cracking.  My neck muscles are constantly sore to the point where I cannot hardly move my neck.  I even had 1 bout where all my muscles in my neck, down to my scapula and left arm locked up.  I have very little use of my left arm with lifting because of pain in my left shoulder.  Sometimes I feel like my body is misaligned. 

Can you tell me if this is consistent with fibromyalgia symptoms and pain?

I am working and have already taken a half tablet of Oxycodone- do not want to be out of my gourd trying to work today. My back just up against the work chairs feels terrible, the ribs really hurt and I have some weight on me, gosh if I were skinny I would really be in trouble. Any advice out there as to how to sit here for 8 hours with pain?? Thanks

eating bread, things like Stromboli or pizza could aggravate this. I would have put this post on the immunosuppression board but not many seem to visit there. I was doing ok, taking some Lyrica which seems to have blocked a lot of the intense pain I have had and the other day ate some Stromboli and the rest of the day was very, very achy for me. Are there persons out here who might have some information on this, maybe working with people who have this or others who might have picked up information that can pass some on to me. I really, really love Italian food but I would pass on the bread ladened parts if that is what is causing the majority of the pain I have. TIA

My son is 8, he's in 3rd grade.

He can concentrate for hours on videogames.  We spend all of our time together, except for the hours he is in school.  Of course, I'm a SAHM MT, so that makes for more time for us.  He talks nonstop to everyone, everywhere, all the time.  However, my dad and my DH's dad do the same thing, so that could be inherited!

I'm not sure if ADD is the right word here, but don't know how else to describe it.  He's not behind by any means in school, however the thing is, it takes him twice as long to complete *jobs*, as his teacher puts it, than the other kids.  I know from my experience with him and homework, and it's like pulling teeth sometimes to get one worksheet done.  He's just extremely social, I guess.  He can't sit still.  He has a hard time focusing, I do know that much. 

Medication is the last thing we want to do (yes, his father is VERY involved in his life...we are an intact family).  I'm thinking about taking him to his ped's office just to talk about some things we can try.  I don't want him labeled with anything unless we know for sure he has it.  I'm just exploring options right now.

Thanks for the advice and responses y'all, keep 'em coming! 

I definitely need to lose the plastic hamster cage.  It has metal slats on the sides and all of their bedding gets pushed out all over the floor.  Who ever thought that was a good idea.  I wish they would have warned me at the pet store. 

BTW, three days after we got them, one of them chewed its tail off or one of the others possibly did it.  Ever heard of that? 

I think my husband could probably change those too, but $100 each bearing, and it's happened several times to you, that would get really aggravating.  I'm considering a different vehicle, possibly.  I like my car alot, but if this is something that could be ongoing, i don't want the headache.  we have a 1994 dodge dakota that we bought brand new and he maintains it and we never have problems with it.  i just think some of this new technology on the cars isn't so great.

thanks for your info!  it helps to know what other people have done.  there is a website i found topix.com that have a whole bunch of people on there that have had this problem and some of them said what they did to help the problem.

i don't even have credit cards to some of these accounts that are open.  i think i will end up closing some of them.  i think there are at least 10 or so of these credit card accounts that are open on my credit report that i don't use at all and haven't used for many years. 

First, her name is Dixie Lucille...she's precious!

Second, I am in no way expecting her to be fully potty trained by now, my thing is she poops in her kennel, then gets it all over herself. She goes out at least every hour on the hour.  She eats at 7, 12, and 5 every day, then goes out to potty, walk, etc. We did not get her from a *breeder* per se, a neighbor had pups so we got one from her. She was kept outside when she was with her family.

We do the whole praise and treat thing when she goes outside. We play with her, we walk her regularly...I am a bit impatient by nature, guess that's something I need to work on.

Anyway, thanks for all the advice. I'm not ready to give her up yet. Our 9 YOS loves her, which is a HUGE accomplishment for him, as he has always been afraid of dogs, but like me, fell in love with her when we saw her.  My DH always wanted a Basset, so held out until he found one. She's a sweetie and I know her accidents are not her fault...I just hate cleaning up the mess and having to wash her off again and again.  I'll keep y'all posted on her (and my) progress!