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I have wondered if I have fibro too...sm

Posted By: curious girl on 2009-06-21
In Reply to: Costochondritis - curious girl

I have been soo tired too. I know tiredness goes along with fibro so I wondered. I don't know.


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I have wondered about that sm
I won't take a shower if there is lightening. Is that silly?
I have wondered.....
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just wondered
The tampon thing is just gross. I have seen stuff in my magazines using those to make crafts. I'm sorry, but there is no way I would make a craft with something like that. lol
Often wondered that myself.

I always wondered about that...thanks!!!
I've often wondered if the growth hormones added to dairy products could possibly be absorbed into the human system and be contributing not only to the precocious puberty you mention, but also to the obesity epidemic amongst children (of course, I realize the sedentary activities such as gaming also contribute to this problem).

I avoided any dairy products with that growth hormone when my daughter was younger and bought organic instead just in case.

Thanks for the info, DB!!!
I often wondered too.
Years ago my niece got a small bird on her stomach. The tattoo artist (I use that term loosely) asked her if she planned on getting pregnant and, if so, to think about placing the tattoo somewhere else. She went ahead and got it on her stomach. Three children later, it looks like a vulture spread out on multiple branches (those would be the stretch marks).
I have wondered if
I would actually be a bit faster if a little tipsy (as more relaxed), but I'm afraid I would end up too drowsy after a bit.
Fibro
I got it 14 years now. Other than the lack of sleep the ebbs and flows are just sooo much fun. I take doxepin to help sleep through the night, just put me on Zoloft to take the edge off the pain that the Percocet I live off of doesn't handle anymore. At one point I went to a pain clinic and got steroid shots right in the base of the skull and all the way down my neck and shoulders, hurt like a you know what but got me over the flare and didn't get another good flare for another 5 years. They also had me on doxepin then, Paxil, ibuprofen, baclofen, and one other which I can't for the life of me remember. Oh yea it messes with your memory also. Watch your sugar intake very bad for fibro sufferers. I sit here on a heating pad all day or my back just kills me
I have fibro...
but my back doesn't hurt; however, I am sore around the bottom part of my ribs like if my 6-year-old tries to hug me and then at times when I have a flare - it seems as if my legs get really weak feeling (like jello) and then the next day they will feel sore and bruised like especially my butt; so I would think that possibly you could be having some lingering pain.  Do you see a rheumatologist regularly? If so you might call and inquire and if you've not seen one in a while maybe you need to have a workup to make sure it's nothing more serious!  Hope you get to feeling better soon though!
Fibro
It sounds like costochondritis to me. Have you tried an anti-inflammatory? I have fibro and I am in constant pain. Get a good massage and put some heat on it and see if that helps. Hope so. Fibro is diagnosed with several different trigger point areas. Best of luck and hope it goes away and soon!
I wonder if this is really fibro or?
I had a flare here for about a month and things seem to have become fairly quiet but now I have really bad pain in my back section including the ribs. I had some benign cysts on my kidneys and have had a follow up on those twice. Being as this is back and the pain, I just wonder if others go through this same, flare and then maybe the back continues to be sore, hurt??? Thanks
fibro
What meds help you?
Fibro
Hi,

I would try amitriptyline or Doxepin. Also avoid all sugar because you probably have yeast overgrowth like I do. I also drink Reliv products, Classic, Innergize and Fibrestore. You can check out their info at Reliv.com. A friend of mine could stop her meds after the fibro. Drink lots of water too. You might check out the guiafenesin protocol. This works for some people.

Hope all this helps.
Fibro
Sorry I meant stop her meds after the Reliv. Fibro fog here. I also have cervical spine problems with surgery so I have a double wammy. The best thing is good vitamins, lots of magnesium for the muscles. A rheumatologist can diagnose and help you. Sometimes they give Ultram too which helps.
Not Pam but have fibro too

Hey, I have extremely bad fibro too, have for the last 10 or more years.  Well, at least they say it's fibro, but it doesn't come and go.  The pain is always extremely bad and never ever goes away.  I have days when I can barely walk or get up out of bed along with very limited activities.  I can no longer do at least 50% of the things I used to do even simple house cleaning. 


I went through an enormous amount of testing and saw multiple doctors who gave me worthless medications that did nothing or just made me more sick and brushed me off.  Like in your post you said they are giving you a Medrol Dosepak?  Why on earth would they give you that?  Fibro is not an inflammatory condition and steroids will not do anything unless you have other comorbid conditions such as arthritis, lupus, etc.  Steroids cause all sorts of damage to your body, and if they are not helping you or you don't have other conditions, I absolutely would not take them.  Another thing they like to do is put you on NSAIDs.  Again, these do absolutely nothing for the fibro and can do irreversible damage to your GI system, kidneys, etc. 


The only way I can live and function to do absolutely anything is because I am on daily narcotic pain medications.  It took me a long time and several physicians to finally be referred to a pain management clinic that would actually help me.  It is inconvenient due to the ridiculous laws in this state regarding chronic pain patients, as I have to go once every month, but again, that's the only way I can function.  So, I would definitely suggest you see a pain management specialist or a pain clinic.  Regardless of what some of these ignorant doctors say, you don't have to "live with the pain," or take numerous expensive medications that just do more damage than good.  It may take a while depending on where you live to find a knowledgable pain management doctor with compassion and you may have to go to several different ones until you find the right fit, but eventually hopefully you can find one.  It can be very discouraging at times when you are in agony and doctor after doctor won't help you, but just don't take no for an answer.  You deserve not to live a life full of pain.


Good luck to you.  I really hope you find something that can provide you with some relief. 


To Fibro Too
Well, got to tell you, the shot I was given last night worked like a charm. No pain today for the first time since December. I have not picked up nor started the Dosepak but I feel 100% better. I do not have arthritis and I do not have lupus but right now I would about swear on these shots. Since the pain has eased up, now maybe I can get into some kind of exercise program because I hear that really helps, could not do that before, too much pain all over. I was told the shots not to be taken on a regular basis and understand that but on my vacation this summer you better believe I will have 1 before I leave.
Fibro - here's what I did
ok - this sounds ridiculous, but I did get a bit of results from it - enough to put on a pair of shorts in the summer. I, too, have fibro and had to stop my normal exercises (I now do pilates on a machine). I had my kids roll my legs every night with my grandmother's rolling pin. Now I don't know if this worked because it was my grandmother's rolling pin or if just any wooden or marble pin would do - it was a bit painful in the beginning, but I got used to it. They did start charging me .50 a night to do this - but we got some good laughs and my legs are okay. I would like to know what to do about my saggy knees now -
I have fibro, too.

Believe me, I feel your pain, literally. I have been misunderstood more times than I care to mention, even by family. Sometimes people think they know better than I how I feel. I have lived with this for several years, and I know what I am feeling and talking about. Actually I have always felt we have a great responsibility regarding our body and state of health; that is, to report what is going on, and most importantly to give the best history possible to our physicians. Sadly, this is still a diagnosis that is misunderstood and even questioned by some health professionals. My friend's husband looks at me every now and then and makes me go through the whole thing again after he asks me with doubt in his eye


NOW, WHAT DID YOU SAY WAS WRONG WITH YOU AGAIN? 


I truly do know your frustration. 


Fibro, all over
Pain every day, horrific some, tired of trying to fend for myself, no help from other physicians I have seen.
I wondered the very same thing.
x
I have often wondered how people sm
find sites like this. A while back there was a young girl that asked for money to help pay her bills due to credit card debt. People actucally sent her money. How are these sites even found? Just curious?
She is quite fashionable. Yes, I wondered where her
xx
I often wondered if a hysto

would help with PMS symptoms.  I even thought about exaggerating a few of the physical symptoms, if needed to get one.  I do have back pain to the point of seeing a chiropractor.  The cramping isn't too bad and I don't have a heavy/long cycle.  I just have severe PMS.  Thanks for your input.


good for you, wondered how you
were doing. I am so happy for you. The decision you made was a good positive one and that alone would improve your outlook and mood.
OMG!! That's it. I wondered why mind was so.....sm

explosive and obviously ready to fight over just anything.  Why I never took this into consideration I will never know, but that is so right on!!


I have always kind of wondered if they ...sm
were really his because the children look 100% white to me. I mean, I know, it is possible I guess to have all white features. It is just I haven't seen a mixed child myself who didn't at least have a tanned skin who was of mixed race. I had a sneaking suspicion that he wanted 100% white children seeing as how he obviously wanted to be white himself. I mean, he did something to his skin to lighten it, and it was lighter than some white people's skin. So I can see him not wanting a child with dark or even slightly dark skin as a lot of mixed children have. If he wasn't comfortable himself having dark skin then do you think he wanted them to have dark skin? I don't. I could be wrong, but I have always suspected they weren't really his by blood. Of course, he was still their father whether they were his biologically or not. He is the only dad they knew. So he was the father, yes, but biologically, I don't know.
CALLING ALL MTS WITH FIBRO!!!
Hi. I am looking for some helpful hints as to working with fibro and how others of you deal with the pain and fatige, etc. Thanks in advance.
I have been diagnosed with fibro but
I have fatigue sometimes and don’t know if from that or from the hypothyroidism that I have, double duty so to speak. I have appointment this week to see what exactly is happening with me. Terrible, terrible pain for days on end- thought fibro, now not sure. I have some hydrocodone and take 1/2 pill of that when severe pain with fibro, supposed to start rehab for mild exercises but too much pain involved now with ?? I had a boss 1 time and she said she started exercising and that was the only thing that helped her. I just have had some setbacks to where I have not been able to start yet (including shingles!!). Hurt so much with the fibro and think the shingles started because of that. I can sleep at night, no problem there but some mornings unable to stay in bed because of hurting. I will give a follow up when I visit my physician this week and see what he has to say about if this is fibro, what does he think is problem, things you might do for fibro, etc.
Fibro meds

I was diagnosed in January of this year by a rheumatologist after having problems starting last August that began with a rash and my GP did a battery of tests - the rheumatologist started me on 1500 mg of Relafen (which has greatly diminished the tender areas like my hip areas), I also take 150 mg of Zoloft, 600 mg of neurontin, 50 mg of Tramadol every 4 hours as needed (which do me has not really helped the pain 100%, but it does lessen it a good bit) and I take a muscle relaxer at bedtime and sometimes during the time.  These meds do not zap me and I feel more functional with them than before. I also take Halcion if I am unable to fall asleep, however, these days it seems that I am so exhausted that I have no problem sleeping as long as I am not hurting and the muscle relaxer at bedtime seems to help with that. Of course now that my inflammatory markers are at a near normal range I am walking 30 minutes a day and have begun stretching exercises 15 minutes in the morning, 15 minutes at night to help with the muscles.  The rheumatologist has said that all of these will change as the fibro progresses and I age (I'm only 33) but he said if we stay on top of it it should be very tolerable for me from now on - I am thankful to my GP for the referral to this doctor because I have read of so many stories where the GP ignored the patient's complaints only putting them on powerful pain meds and not really getting to the source of the problem or telling them that there is nothing wrong or nothing they can do...I feel now that the pain is being managed, my biggest complaint is being tired at doing the simplest of things - like folding clothes - I feel that I need to rest after I do that - whereas before it was just a normal thing.  My rheumatologist has stressed that sleep/rest is very important so he says when your body tells you to stop and rest - do it - whatever it is you have on your to do list can wait - otherwise you're gonna really feel bad and then nothing on your to do list will get done. I see my rheumatologist every 3 months right now and he says once I am doing okay on the meds and everything seems in check we'll go to every 6 months and then yearly until something goes out of whack and my treatment needs changing - he seems to really be on top of things.


What meds are you taking?  Do you see a doctor on a regular basis?


I have fibro and think this is what is going on with the wrists...

As far as I know no carpal tunnel syndrome but my ribs are about to kill me today and I have noticed my arms, hands, fingers and the like giving me the blues. I have no pain at night, only when I lay my wrists down on my desk to type , they really hurt so bad and the elbows hurt and the arms, guess I am wearing out. If anyone else has similar problems, let me know. I took something for the fibro a little while ago and it seems to have stopped that really bad pain when I rest my wrists. Thanks


Anyone with fibro tried guaifenesin
and if so, did you get any good results? I read about this last night and want to give it a try, over the counter, no rx needed. I am so tired of being 1 big ache. Thanks!
I also have fibro, and CKD, so we might be more vulnerable.
But the episode I had made it hard to breathe. It felt like I had a band around my body from just under my breasts to just above the belly button and it was just tightened to the point where anything was painful...breathing, moving, sitting, lying down. It was just miserable, and it lasted for better than 6 months.

I had no treatment for it. I'm not sure if there is one or not.

Hope you don't have it...would not wish it on anyone!
I have been diagnosed with fibro about 9 SM

years ago. You mention the pain is in your ribs. When I was diagnosed that was not one of the key points, of which there are many. I have pain all over, really. I have very much pain in my neck, wrists, elbows, shoulders, lower back, etc. I have terrible burning and pain in my muscles in my arms and legs as well. I have advanced osteoarthritis and chronic fatigue, which can also accompany fibromyalgia, as I am sure you know.  Symptoms can certainly vary from one patient to another.  I wish you luck and success in your efforts to control pain. I wish I had the answer for everyone suffering daily with chronic pain.


What went away, fibro or rheumatism
NM
This is how my fibro figured out
I had not a clue when I went to the doctor, shoulders really hurting me, so sore and tender. Doc got me to lie on my stomach and started to palpate my spine. When you jump off the table with pain, then you have fibro.
Hmmm, wondered why they had the cap on that baby
in the Bahamas? Did anyone else notice that? Baby mama drama continues.
Dang, I wondered why it hurt so much
sharper scissors, huh?
I had wondered if it was bec his joints are sore (sm)
That is interesting. He does seem arthritic these days but I thought it was just from him being so old. I had wondered if he was chewing his paw (the top of his paw, not the pad) because his joints hurt. I feel so bad for our poor pets who can't tell us what is wrong. I guess he will have to go to the vet (whether he likes it or not!)LOL
I also wondered why she mentioned biracial
it sounds racist to me to tell you the truth. Instead of saying children, why separate them? Oh by the way, I don't live in Chicago, live in the south, have biracial child, grown now and she told me NEVER had a problem in school, if anything she always told me had the best of both worlds! She has a wide mixture of all races in her friends from Caucasian to Asian. I as well as she take people for how they act, not a certain color.
Have often wondered why they take my picture at such an angle (sm)
to make me look like I have a major second chin. WHen I look in the mirror I think I am holding my head tilted back and it doesn't show to me as much. (The glory of looking through trifocal lenses I suppose.)

If you are happy with yourself and healthy, don't stress about it. I think we spend too much of our time obsessed over our appearance anyway.

P.S. this came from a fat and sassy grandma, so take it for what it is worth.
I agree with you. I just wondered if all the folks
speaking out in defense of the bible being there would feel the same if it was another religious document that was not in line with their beliefs.

Out of curiosity, do they have bibles in public school libraries? I honestly don't know.
I wondered about that as she is going to costa rica for
several weeks this summer, plus cheerleading camp, plus "regular" summer camp. We got her an IPOD last year so maybe a gift card in her stocking to download some more music would be okay?
Like you, I have fibro and broke out with shingles for the first
time this past month. OMG, could not tell which was the worse. Do you use anything like fish oil or glucosamine? My hubby gave me the fish oil and it helped me a lot with the stiffness in the joints. My fibro started in my late 50s.
Fibro and work schedule
Hi. I noticed several people have fibro. I constantly fight with the pain and fatigue. I work only part time. How do others of you schedule your work and deal with the pain and fatigue. I need some good suggestions. Thanks.

Pam
FIBRO- calling PamT
Went to the physician today and said had no idea what was going on, the pain there every day but on a scale of 1-10 today, probably a 9+- but hey that had improved from the weekend when it was a 15+. I told him needed to find out what causing and he checked for the pressure points that go along with fibro and I was about to climb up the walls when he told me I had the classic signs. I told him the big drugs not helping but have been given Medrol Dosepak for a week, cortisone injection (which he says should not be given all the time but say if a vacation coming up, then get this) and antidepressants as he says the nerves travel close together, the ones for pain and the ones for depression and they have a cross over effect for the fibro even if you do not have depression and I do not. Lastly he recommended that I get into water aerobics and will check on that tomorrow. I have low impact exercises set up but had to get over this intense pain before I could even do that. Hope this information helps.
I have been diagnosed wth fibro about 10 years ago SM

and know what you are going through. I read somewhere that it is impossible do describe the pain, and that is how I feel. It is a gnawing, pulling, burning, aching, fatigue all the time. No one has helped, and what meds I have tried gave too many other bad side effects, stomach upset, etc.


Oh, I wondered when our aetheist friend would arrive.
t
Worried, horrific rib pain (I think) and wondered
if anyone else has ever had this, what did it turn out to be. I was diagnosed with fibro but this is really unbearable. Any thoughts?
I could have written your post. I've wondered too.

So glad you asked this, have wondered the same thing. nm
!
Totally agree and I've always wondered...sm

HOW the H**L do they get away with it when they obviously are NOT the majority?!!?? I don't get it.  And if they have "rights" to have things their way, what about OUR rights to have it OUR way???  I've just been baffled and dumbfounded about this.  Especially the whole Christmas thing.  It seems to me, that if 99% of the people WANT Christmas parties or Halloween parties or whatever then they should have them.  It would then be the parents right to keep their child home from school on the days of the parties they do not believe in.   The same goes with the Pledge of Allegiance.  If you don't believe, don't participate.  Don't take away everyone else's right to have it!  I also don't understand how these people can live with themselves.  They have to know they are the minority, yet they took away our rights, not to mention in some cases, many, many, many years worth of history!  I'm talking about everything, not just the school parties and such but things like taking God out of the courts, the Pledge of Allegiance from schools, etc. 


Can you imagine if we did our presidential elections the same way?  The winner being the one with the fewer votes just because some p*ss head was a crybaby and couldn't deal with not having his own way.  To me all of it is just a DUH! situation or as Carlos Mencias says it "dee dee dee!"  and shame on the courts/government or whoever lets these idiots get away with it!!!!  MY rights have been taken away because of a FEW a**holes that apparently weren't getting any satisfaction at home so had to get their jollies off on something else! 


Same goes with banning books from libraries, shows from tv, etc.  If you don't like it, don't buy it, don't watch it, don't look at it!  DUH!  I don't like onions but I'm not sueing grocery stores because they sell them and having them banned from the shelves!  DUH! DUH! DUH! FREAKIN' DUH!!!!


And WHY the H*ll are WE, the majority, not putting up the same fight the p*sshead, friggin crybabies did to get these things back??? Instead we sit back and p*ss and moan and cry about it. (and go off on boards like I am right now, lol)


Struck a chord, sorry.  It's been building for a very long time.