Fibromyalgia
Posted By: Sarah on 2007-02-25
In Reply to: Does it ever go away or - Annie
I have had it for 25 years and it gets worse all the time. The only time it didn't bother me was when I was pregnant (4 times!). I feel like I have the flu all the time and I am tired and exhausted. I also have arthritis and have had a hip replacement and need the other hip replaced now and I have degenerative disc disease and need spinal fusion. It never goes away -- ever. Stress doesn't matter and not being stressed doesn't change anything. A lot of drs. think it is "all in your head" and many have told me that. Some put me on antidepressants which helped the burning sensation a lot, but made me gain 50 pounds. Sorry to hear you have fibro---it is very debilitating. I work in downtown Chicago and have to walk 11 blocks from the train to work -- it is very hard. I had my first hip replaced when I was 43 -- very, very unusually young.
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Do you have fibromyalgia and if so
are you able to get any relief at all from it? I was diagnosed about 2-3 years ago and it seems to flare. This morning when I woke I felt like every bone in my body was sore. Earlier I took a half tablet of a pain pill but I do not want to zonk out on anything as I want to work and don't need that, just needed some relief as just sitting in my work chair feel like my spine was right up against the chair. What, if any, things do any of you do for the pain, soreness, etc., etc. I know you probably know this is considered "all in your head" by some physicians but I gosh darn didn't even know I had something until my bones ached and when the rheumatologist ran fingers up my spine as I jumped off the exam table, told me then. When I awake, even if early, have to get up as too uncomfortable to just lie there in the bed. TIA.
Fibromyalgia?
Wondering how many others here have fibromyalgia or similar illnesses and what your coping mechanism is? Recently diagnosed in January of thisyear? Finding it difficult emotionally/mentally to accept that one day I may feel great and then the very next day I'm laid up in bed - completely exhausted, hurting, etc...I know gotta get a grip on it - think positive - behavior modification - but it's still difficult at times - guess I'm just venting a bit and curious as to others here.
Fibromyalgia
Unfortunately, I'm part of this club too. I can relate to what you are saying. I also feel completely emotionally/mentally exhausted at times. I just deal with it the best that I can and push myself to try to get beyond the pain. I have to care for a small child and my husband has a disability, so it is me or nothing. I wish I had more great days. During that time of the month I could just die. That is the worst for me.
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While transcribing a report recently I came across a website that discussed somatization disorder with regards to fibromyalgia and CFS. I just did a Google on somatization disorder and it was the first website that came up. It was very enlightening and I definitely going to check out my medical records and physician dictations to see if I have ever been classified as having somatization disorder when in fact I have fibro and CFS. These are very different disorders, but fibro/CFS can be missed if a doctor is not well-versed in all 3 disorders. I hate it thought that many doctors do not want to be forthcoming with your medical records - I have run into that more than once. Well, I'm on a mission now -
fibromyalgia
I have this as well. Have had for years on top of osteodegenerative arthritis. For years the docs thought is was only arthritis (have had several implants in both hands.. All of the specialists I have gone to do not believe fibro is real illness. One had the nerve to tell me I was pain seeking. I was so angry.. Told him to do drug tests and whatever he wanted, but I was sick of the pain. My pain is located in my ribs and goes all the way around like at my bra-line (as if I were wearing one that is too tight).My BP went up because of it too.. Hurts all the time. Finally, my (really old old GP doc) whom I love told me that they have no real proof of this problem and a lot of docs don't want to deal with it. He put me on vicodin 1 a day. He told me to break in half and use it twice a day (1 pill) which I do. Although it doesn't stop it naturally, it does help me and I can work. He believes me and knows I don't abuse or over use.
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Fibromyalgia, meant to say
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