Epstein-Barr or chronic fatigue syndrome
Posted By: Sandi on 2007-09-25
In Reply to:
Anyone here deal with Epstein-Barr virus and/or chronic fatigue syndrome? My 17-year-old DD was diagnosed recently with CFS. Her EBV titer came back at 2900 or so. She hasn't been sick with a fever or sore throat for over a year but has been tired a lot for at least that period of time, so we assume she was infected at least a year ago. She never had swollen nodes, so I really don't have a specific time in mind.
She is also anemic and recently started iron supplementation. Hopefully that will help some. We just wondered about some tried-and-true therapies for the symptoms. Hopefully she will be one whose levels continue to fall over time.
Sandi
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Like below I had Epstein-Barr, which it could be but (sm)
You may need to go to the doctor - maybe just a sinus infection and nothing to do with your blood sugar at all. But also try eating healthy for a day, no balogna and ketchup ;-). I have bad eating habits and when I eat really bad I feel like that. It really sounds like you are sick. Are you really tired? Because I had those symptoms last week with extreme fatigue and was going to bed by 6:00 every afternoon....got better after several days...there is apparently a flu going around and a version of it is just mostly extreme fatigue.
I had mono or Epstein Barr Virus...sm
which ever you want to call it. Epstein Barr Virus causes mono. I had it in 2003 and I was so sick. Believe it or not, I had it for 1-1/2 years. I was diagnosed after doing extensive bloodwork. I was house bound. I couldn't rarely go anywhere. I was so weak I couldn't get out of bed some days. It was the most awful thing I have ever had. And nothing could be done about it. It just had to kind of wear off. I did take a lot of vitamins toward the end of it and they seemed to help.
Fibromyalgia/chronic fatigue - I had it for 7 years (sm)
Started at about 27. If they rule everything else out, that might be what you end up being diagnosed with. I have a tendency to go on and on about this because I tried so many things over the years, so I'll try not to do that right now :-). My first question would have to be "Do you get good sleep?" If not, please Google the effects of long-term sleep deprivation - I had ALWAYS been a poor sleeper, sort of anxious person. Long term DEEP sleep deprivation causes the exact same symptoms as fibromyalgia and chronic fatigue and other chronic illnesses because your body does not ever get a chance to completely repair itself. If DEEP sleep is an issue for you - that is a great place to start - get a good prescription sleep med and don't be afraid to use it! Over the period of a year of using sleep med and getting good sleep I noticed myself getting gradually better and better.
fatigue
Have you had any recent blood tests done to rule out anything? I was thinking maybe your thyroid. Also, how much exercise do you get like walking maybe?
fatigue
Fatigue that you are describing can sometimes be a symtpom of depression. Take a look at your life and try and decide if there is anything you would like to improve/change, anything you are unhappy with?
How do you deal with fatigue?
Do any of you suffer from fatigue? I mean being so tired, no matter how much sleep, you could just hit the floor and go into a coma? I thought it was the Lexapro I was on for about 6 months so I discontinued that. While there was a teensy bit of improvement (and that was well over a year ago I stopped it), the fatigue is back in full force. It is a year-round problem for me, certainly moreso during winter, but it is at its worst when I sit down to the computer.
Do you have any suggestions as far as if it could be something to do with my work space? It's clean and bright, almost always has a nice Yankee candle burning, and my chair is a typical task chair with no arm rests and I try to sit as upright as I comfortably can. My keyboard is a regular style, nothing fancy, but nothing hurts. Monitor is a flat panel LCD. I stay away from sodapop and only have 1 cup of coffee daily, otherwise it's water w/Crystal light, and I'm not taking anything for pills except a daily vitamin.
I'd certainly appreciate any tips or suggestions you might have. Thanks for taking the time to read this! 
Roseanne Barr Not Rosie
The View is on ABC. Unless you're talking about something that Roseanne had set up with The View and or CBS already. Then sorry for the confusion.
Jaundice, fatigue, nausea and vomiting, muscle pain,
itching. My husband was an alcholic for about 15-20 years. He is also 47. His last drink was on September 4, 2006. He finally quit drinking when his weight dropped to 122 pounds (he is 6' tall). His liver enzymes were way off. He was hospitalized for a few days and has not had a drink since and, boy, am I proud of him. It has been tough for him I know. Several years ago, he experienced jaundice and was hospitalized then. He quit drinking then for about 6 weeks and the jaundice did clear. He is doing much better now after having been sober for 3-1/2 months. He was prescribed Valium to help and it has helped. We do not know that he has liver damage already, but he has gained about 25 pounds since September and I just keep praying that he will stay sober because his father died from the effects of alcohol at 54. I hope and pray that your husband will get some medical help.
Roseanne Barr or Rita Rudner? Both Jewish.....
OP means Roseanne Barr; Rosie O'D not Jewish *l*
Does anyone else have chronic sinusitis
I have been battling this particular bout for two months now, and I am on my third run of antibiotics (Avelox the first two times, azithromycin this time). I have negative pressure in my left ear which has caused severe dizzy spells, and I am still running a low grade fever, even though I took the last of the azithromycin today.
I've had allergy problems for a long time and I usually get a sinus infection maybe once a year, but it has never been as bad as this. I was wondering if anyone else has had this kind of experience and, if so, is there anything that helped?
TIA
Slipping rib syndrome? sm
There is a girl I know who has been having this kind of problem for over 3 years, to the point that she was on chronic strong pain medication. A few months ago, she was diagnosed with slipping rib syndrome caused probably from a bout of costochondritis that didn't fully go away and caused her rib cartilage to basically wear down and make her ribs start rubbing against each other. They tried epidural blocks that helped temporarily, but she finally had her lowest rib on one side removed about 6 weeks ago and was without pain there for the first time in years. She is possibly going to need the next 2 ribs removed on that side and possibly all 3 on the other side to completely take care of the problem. Resting and antiinflammatories are the first line of treatment, though, if it is still early in the process. Hope you get some relief.
Friend of a chronic farter
I've been friends with a man since we were about 6. He has ALWAYS had chronic gas. He used to be sent from class after the fact, which never made sense to me. Some teachers even made jokes about it. I can't believe you would punish a child for farting in class. I'm guess all the teachers are fluffers not farters.
Yes, I have the blonde hair syndrome...
I got on my treadmill one day and it seemed to be lagging, not working right. Hmmm, what could be the problem? "Honey, can you check this out for me?" Dh runs it at neck-breaking speed to see why it's not working normally. Then, he lifts the runner bed up, and there's my huge Dorland's Medical Dictionary underneath! Problem fixed, dear. Talk about feeling stupid. My treadmill is right behind my desk and keep my book right there next to me on the floor. It must have gotten moved over a little more;-) I have these moments every so often.
Cymbalta for chronic pain?
Does anyone know anyone who uses this for pain or depression? Any info would be appreciated. TIA
you have got the ole stick it to the dentist syndrome
I paid that bill also and it is awful. Tell the dentist you want a different prize.
they told me it was post-cholecystectomy syndrome
and that it was pretty common and would gradually and eventually stop. I was just thinking today that wow, I haven't been sick to my stomach or puked at work in at least a month now, and the diarrhea has been better too. So maybe that is all it was. Keeping my fingers crossed!
I thought there was a chronic illness board - ? (sm)
If so, can anyone tell me how to get to it please?
Wolff-Parkinson-White syndrome
Does anyone have this or know of someone that does. My 13-year-old daughter was having trouble catching her breath and has a very high heart rate, up to 220 when she was running in gym. I took her to the doctor's today and they did blood work and did an EKG, which he said was normal (the blood results will be back in a few days). He said that it sounded like she either had a thyroid problem of Wolff-Parkinson-White. I look it up quickly in my medical dictionary and understood it slightly. I wondered if anyone knew what the treatment for this was. I know her doctor will let us know, of course, but she's very anxious as are her father and I. Heart problems run in our family. My husband had open heart surgery for an aortic valve replacement two years ago.
I googled post tubal syndrome
What I found scariest is the way doctors commonly try to blow off your symptoms - blame formerly being on the pill as being why it was never this bad before, or just act like you're being a big baby. Many women on those forums saying "thank god I read this - now I know I'm not crazy". I went to several doctors (male and female)about the pain and not ONE of them said it could be related to my tubal. They don't want to admit these side effects are common, and they don't want to admit they don't know what to do about it. They want us to just shut up and deal with it. Its shameful the way they sweep this under the rug, and the only way you find out its common is word of mouth. No such thing as "informed consent" when it comes to tubals! We need to spread the word! Like call Oprah or something!
sounds like middle-child syndrome nm
nm
Chronic back pain, AKA, just keep me in drugs so I can be ..
in a stupor and maybe get disability or at least a handicapped sticker for my car.
Changes of a Down syndrome baby go up with age, though. You'll need to decide if an amnio & its
s
Yes being in this field and/or having had chronic "mystery" health problems (sm)
You do quickly learn that physicians are only human and they don't know everything. We really have to take a lot of responsiblity for our own health and that of our family members who may not have the same knowledge. We do not know as much as physicians know about medicine, but we know more than they do about our own bodies and our family members and we just might have the insight they need to put together a diagnosis.
Good for you for writing to them!
Google post tubal ligation syndrome
Very many people find there are side effects to a tubal. My worst problem since having one is horrible, debilitating cramps. Every.single.month! Sometimes they get so bad I can't work at all, and I have to baby myself during that time every month as the least amount of physical activity brings 'em on. I have been to numerous docs (who act as if I'm exaggerating the pain), had numerous prescriptions - they finally put me on a strong psychotropic drug (where you still feel the pain but you're so stoned you don't really care).
I had never heard of PTLS prior to my tubal and had no idea what I was in for. Docs don't give full disclosure, IMO, as to the risks. Please look into the numerous websites on it - the testimonials of people who all have identical symptoms should be enough. This can mess you up until menopause - and its completely unfair to take on a sentence of pain vs some guy's ego!
Any good affordable alternatives for chronic constipation besides Glucolax? sm
Our 17-year-old stepdaughter has chronic problems with constipation. The insurance company is now refusing to pay for this medication because MiraLax is now over-the-counter and is similar. We were paying $3 a month in copays for the Glycolax and I'm seeing prices of $22-25/month for MiraLax. She doesn't eat the best high fiber diet (typical teenager) even though the GI doctor told her to because her mother died of colon cancer and other relatives died of various cancers.
Any recommendations of things to try?
Google post tubal peace of mind syndrome
Nah, just kidding but I had a tubal at age 29 after my second child, knew definitely did not want another, had always said no children at all after 30 and that is what I did. Never had the first problem with it. I would not try to talk a guy into a vasectomy if he had any drawback to it because lots think it somehow takes menhood away and men can be such big babies to start with sometimes.
Very true! Chronic sinusitis here, neti pots don't work for me but oceans do!
x
The OP was talking about Roseanne....the show, Roseanne Barr, not Rosie O'Donnell.
x
How is this kid in school with chronic infestation? School nurse
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