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Check out celiac disease from gluten allergy

Posted By: goin cray-z on 2007-10-21
In Reply to: stress causes it too, my child has it.... - also on Imodium all the time....sm

Many times it is mistaken for IBS - my grandson is being tested for this by GI doctor on the ball!


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That seems to be debatable even in the medical field. Disease or not disease?
things that could lead to diabetes and hypertension are true, they are still diseases and could obviously occur with or without staying away from known causes.

But for you to come here and say alcholism is "NOT" a disease is a little extreme and maybe should have been accompanied by IMO? That is my opinion anyway.
celiac
my daughter is 23 and has celiac disease - she says the same thing you did - food is difficult to find and expensive - so she just doesn't follow the diet at all. I'm worried she will have lots of problems down the road but she won't listen.
Full blown celiac here sm

If I eat wheat or oatmeal (I can't have rye or barley either, but it usually isn't something I am exposed to) I feel like I can't breathe for a couple of hours, my belly bloats up, I start tooting like a banchi and then I can't leave the house until all diarrhea leaves me.  It is TMI, but celiac stools are yellow to chalky gray, even white, NOT normal and are extremely foul as well. 


What this can do to you is make you anemic.  You can have malnutrition from never being able to absorb the good stuff in your food.  You might be either very thin or rather overweight, but you always feel horrible, no energy, tired.  Food never makes you feel better, no matter how hungry you are and how much/little you eat.


Celiac sprue is considered an autoimmune at this point.  The body can't digest the gluten (a type of protein) in wheat, barley or rye.  Oatmeal has gluten, but it is chemically different from the others mentioned here.  Some celiacs can eat it, some cannot; I cannot.  You can't eat any Quaker products because they are all severely cross contaminated and will make you sick.  What happens when you eat gluten all the time, is that the villi in the intestines flatten and/or fall off.  Their surfaces exchange nutrients from the gut into the body.  If they are not present or not functional, it dimishes absorption by 80%.  On the other hand, celiacs who go on a gut healing diet will have their villi return to a healthy state (about 90% of celiacs recover the lining of the gut).


If you have another AI, you have to know that celiac likes to piggyback with other AI disorders, particularly SLE and Sjorgen's.  Also, it is believed that 2/3 of celiacs are concurrently lactose intolerant and/or allergic to dairy.  It is estimated that in the US about 1:150 people is a celiac, whereas 1:4500 will be diagnosed during their lifetime. 


Never fear, however...gone are the days of rice cakes and hard rice bread!  There are many many books on making gluten free bread with bean and alternative grain flours.  There is plenty on the internet too.  The best book I can recommend is "The Allergy Survival Guide" by Melina, Stepaniak and Aronson.  It is everything free...no animal products, eggs, dairy, nuts, fish, shellfish, wheat, yeast, soy...and the recipes are DIVINE. 


The best part is that since going on a GF diet last summer I rarely have a day when I am tired and feel crappy, as long as I behave.  I have lost about 40 lbs with no effort, unless you call eating fruit, veggies, soy and beans constantly in as large a quantity as I like, an effort. I have been able to add some GF desserts back into my diet and not gain weight.  I also have SLE and I am on 7.5 mg of prednisone every day (weaning to 5 mg).  Despite doing a 2-month loading dose of prednisone to get the SLE under control last summer, I dropped 18 lbs the first month on it and another 10 the next month and we all know what pred can do to your waistline.


I'll go and make my polenta crust pizza for supper and enjoy the fact that I won't feel sick after I eat and it will taste wonderful.


I have some good books actually and she might find help for celiac sm

I have Bette Hagman's bread book.  I have made cornbread (as good as the real thing or better), Boston brown bread (heavy, but wonderful toasted with jelly on it) and a garbanzo and sorghum bread (YUK).  The biscuits were so-so.  The muffins were a disaster, but I think I know why.  Now, her pizza crust from her French Bread Mix (you make it yourself) is absolutely TO DIE FOR.  It is better than the real thing to me.  I had no idea what it was like to enjoy a veggie pizza with a chewy crust without hurting when it hit my stomach and then all the way through.  It was PAINLESS and WONDERFUL!!!


I love the Food Allergy Survival Guide which is free of animal products, dairy, nuts, peanuts, soy, wheat and I don't know what all free.  Stuff in there is a mixed bag.  Some of it is lovely, some is heavy and icky like vegetarian/vegan food in the 1970s and 1980s, so gross. 


Because my celiac piggybacks with lupus, it is imperative to follow the diet as strictly as possible.  Lupus had blown my iron binding capacity so I run around anemic if I don't take daily iron.  I have to be on steriods which will compromise my bones, so I have to take calcium and vitamin D.  Celiac, untreated, flattens your intestinal villi if they don't fall off to start with.  Now, 90% of celiacs can regain them if they watch what they do.  Without villi you risk malnutrition and certainly anemia, brittle bones, canker sores and every sort of ailment related to vitamins and minerals.  I am in a risky position if I don't watch it because the dangerous consequences of both my AI diseases overlap. 


I have lost a much needed 40# or so since I started steriods (prednisone) and a celiac diet.  I had been feeling better, but I think I must have had a dietary indiscretion (like too much protein for about 5 days running) and indulged in things that were no-nos.  I am paying for it.  I can't wait to get back to where I feel good.


Longer nights of rest, back on iron pills, strict celiac and vegetarian eating, no eggs and cheese no more than once a week...I'll get better.  It is no fun being such a pain in my own patooty!


gluten-free
This would be a great idea for my daughter, who NEEDS a gluten-free diet but is young, very busy, and has a hard time finding/fixing gluten-free foods. . Not sure if there would be a huge market for it, but it would sure be great for her.
kasha is gluten free...sm

has a natural nutty flavor....It's actually buckwheat....You can make it like a pilaf and add tons of sauteeted veggies of your choice, light meat (chkn, shrimp, whatever).  I recommend chkn broth or vegetable broth rather than water to cook it in.   Can be used as a side dish...(mushrooms and onions, yummy) or even a breakfast cereal cooking with water and adding dried apricots, raisins, prunes, pinapple...the possibilities are endless. 


It can be found at larger grocery stores like Kroger or Publix and at Mediterranian specialty shops.


 Cat            


Anyone gluten-free who could advise me? (sm)
Would love to talk to someone who has gone gluten-free and see what your symptoms were, what you are able to eat, and what your results were.  I think this may be my problem.  Thanks so much!
Wouldn't gluten-free be tough to do?
But it would certainly be a huge convenience for people who shouldn't have gluten. I wonder how many people are even able to be compliant with a gluten-free diet.
Is she on BC pills? Hormones may be contributing now. Tested for food, gluten, other allergies? nm
s
I can almost bet if you have an allergy
to a dog it would not stop there.  there would be other allergies also.  SHould we all just stop living? someone could be allergic to perfumes or dyes. should they not go out shopping because of this?  I guess that is why there is medicine. People cannot control the universe.
allergy
Here are some good home remedies you might try.

http://www.lowchensaustralia.com/health/skinremedies.htm

Labs are prone to atopic dermatitis. There is some good information in this site on that as well.

I have a diabetic shih tzu and in an effort to control his BS I took him off of all treats and dog biscuits with carbs. Because I have 5 dogs I did not think it fair to continue giving the rest biscuits and not him. In this move "no dog biscuits" two of my other dogs quit scratching! They were allergic to the biscuits.
From one allergy suffer to another...
My first allergist basically told me I was allergic to nearly everything, including my 4 cats, who I refused to get rid of. Another allergist looked at my results and gave me a different type of allergy test. It showed very severe allergies mostly to dust mites and a very, very small reaction to cats, but because my reaction was so strong to the dust mites it prevented the prick for cats being read correctly. I would try bathing the dog more often and using those wipes suggested by another poster. Using HEPA filters around the house (and especially in her bedroom) can really help with many allergens. You may want to try really aggressively altering the environment since you sound like you want to keep your dog. Good luck to you! :-)
Has anyone ever had allergy testing before? sm

I have had allergies for years now, but they seem to just get worse every year. I only have trouble from spring to fall. Okay all winter. I have tried every allergy med on the market with no relief. I have used over the counter stuff, Claritin, Clarinex, Allegra, nasal sprays and am now on Zyrtec D b.i.d.  I had a Kenalog injection about a month ago, which usually helps me get throught the summer. I usually get the Kenalog and take my allergy pill and for the most part can get by with minimal symptoms. This year it is like I am on nothing!! I have never had allergy testing before. I would appreciate any input on what has worked for you..or if you have had the testing done. Thanks!


allergy testing-----sm
I just had allergy testing done in March of this year. I had also had it done years ago and was expecting the 100+ sticks on the back. But, I was pleasantly surprised. They had this contraption that had 10 prongs on it and each prong stuck down into the allergen bottle. They then pulled out this contraption and mashed in on my arm and that did 20 "sticks" at one time. They did 3 sets of those and it really was not bad at all. I am now on my 3rd vial of buildup and will be able to give myself my shots after that. I developed sinus polyps during my last pregnancy and had to have sinus surgery last year. The doctors told me that if I didn't get my allergies under control, that the polyps would most likely come back. The shots have helped me a great deal and I can tell a BIG difference.

Just me, but, I wouldn't wait.

Take care!!
I think it is a yeast allergy
Carbs and sugar feed the yeast in your body. I can't drink even a little alcohol without getting hungover or sick. My allergies were so bad that I used to have chronic earaches and toothaches (teethaches?). I also have an allergy to mold and all of the above make that worse. For that, I also stopped eating mushrooms, yogurt, soy sauce, vinegar. I love nuts though so I just eat a few at a time.

I have no sinus problems now except when pollen is bad and never get earaches or toothaches.
No allergy, still eat them in other things
As I was eating, should have left it alone then, had a strange after taste to the food, a sorta tingling, burning yet not that. I have never ate anything that gave me a reaction like this. She and another are doing food service with this and other foods. Have never in my 67 years had anything to cause such. I was thinking perhaps some sort of peppers used in it that maybe others in the south do not use?? My husband last night made mention of perhaps having it analyzed. I still have in the freezer. So strange.
has he ever had allergy testing?
my son takes allergy shots and it seems to help him. he doesn't have to take his Zyrtec as often. We also have plastic covers on the mattresses. I don't think the air purifier really helps him a whole lot b/c he is allergic to every allergen they tested him for.
Allergy to dogs
From what I've heard, anything that's mixed with a poodle is supposed to be the best dogs for people with allergies. Our friends have a cockapoo. Our neighbor across the street is allergic to dogs, and her mother has a pug and for some reason it doesn't bother him.
I'm thinking either allergy or yeast from
from the antibiotic. May need to stop it, but of course call doc.

If it's yeast, Gold Bond (or the generic). Change diet to avoid sugar and white flour. Any carbs should be high fiber type. Instead of giving her yogurt, acidophilus pills are great because they don't have sugar that feeds yeast. If you are at a nature store or healthfood store, see if there is anybody knowledgeable there with other ideas.

Shampoo: OTC Nizoral is great, though expensive.
That's interesting. I wonder if you have a wheat allergy
as well as being sensitive to milk products.
Good advice was given here. Suggest vet check-up for kitty needs vet check. sm
I've had 2 females over the years who developed stones/crystals in urine or UTIs.  Both of them started spraying inappropriately.  Never had a female spray inappropriately other than in these instances.  They go into spasm and can't help themselves.  If it is a urinary problem, eventually you may see slight pink-tinged spray if it gets that far untreated due to the irritation from constantly trying to pee.  One more thought is if the kitty is not sick, maybe the other cat won't let her use the litter box for some reason.  Maybe set up another box for her.
My lab was diagnosed with an allergy to pine needles and had the same
symptoms you are describing. Now, I live in North Carolina where pine trees are as common as grits, so I thought the poor things was doomed!! My vet suggested a cortisone injection in the early part of the season before it got to really take off and then 2 tablets of Benadryl twice daily, which seems to have worked great for the past 6 years, but if I delay that darn shot and she starts that itching then I run into problems because not only is she itching from the allergy, but from the irritation caused from the scratching.
Had allergy testing and then shots for years -

I am highly allergic to dust mites (off the scale!) and had allergy shots for 4 years.  As far as I can tell, it really did no good.  I have had no carpet in the house we built for 7 years now, everything in the bedroom encased, run 2 HEPA filters in the bedroom and 1 in my office 24/7, and I still suffer quite a bit.  I was retested not too long ago.  My test still shows very high sensitivity to dust mites and not really much reaction to anything else (just like before the shots).  I know people who have had great success with allergy shots.  Unfortunately, I am not one of them.  It is worth a try! 


It IS NOT a disease. The use of it causes disease but
alcoholism in itself is not a disease.  My husband was also predisposed to it by *genetics* (his mother and father were also alcoholics).  He should have had better sense than to ever pick up the first drink, but he didn't.  Now, for the rest of his life he will have to battle with the fact that he is an alcoholic (albeit, a recovering alcoholic).  He CHOSE to drink.  He CHOSE to take the chance and it caught up with him.  It's just like cigarette smoking.  That's not a disease, but the effects of the cigarettes cause disease.  If one is predisposed to something harmful, they need to take control of themselves and stay away from whatever causes the problems associated with it.  Both of my parents are diabetics, so that predisposes me to diabetes.  They are both hypertensive (as am I).  I'm predisposed to have hypertension, but I have to use my common sense and stay away from things that could cause the hypertension to blossom into something much more serious.  The predisposition to alcoholism has to be handled the same way.  STAY AWAY FROM IT!!!!! 
Maybe a food allergy. My head itches today too! (sm)
I know you know this - but if she starts to have trouble breathing.... :-) You know what to do!
I think I'll call my doc tomorrow and see about allergy testing
Thanks!
Question about taking vitamins with allergy medication
This may sound like a stupid question, but I've never taken allergy medication and now I've got bad allergies. Just took a vitamin C about 10 minutes ago. Is it safe to take an allergy pill (Clariton I think it is) so soon after taking a vitamin, or does it even matter. Again, sorry if that sounds stupid, just not used to taking either and my head/eyes feel like they are going to explode and I'm sneezing and coughing and runny nose, and just feel icky all over but have got to work.
Does anyone have a dog who has Cushing's disease? sm

My mom and dad's daschund was diagnosed with Cushing's disease.  She's 15 years old.  She's going to have to be medicine for the rest of her life.  I've read on a web site this can be fatal.  Has anyone ever had any experience with their pet having this?  thanks.



lyme disease
Friend's dog was chewing paws because joints were sore from Lyme disease.
Disease question

As someone in recovery for more than 9 years this is my take on it.  Addiction (alcohlism) is a combination of nature (genetics) and nurture (environment).  One can be predisposed to addiction but never know it if they never ingest the substance.  Many people drink but not everyone is an alcoholic.  Drinking the alcohol is a choice that one can control, but once an alcoholic or addict makes the choice to drink, they no longer have control over how their body reacts to it.


If classifying it as a disease is a way for health insurance companies to pay for treatment and healthcare for the alcoholic or addict, then that is fine with me.  But it is NOT an excuse to drink and once one admits or realizes one is an alcoholic they ARE responsible for what happens after they take a drink.


To the original poster wife:  The best way you can help your husband is to take care of yourself and your children through Alanon, Alateen and/or counseling.  The only person YOU can control is YOU.  Lives by example.  Your husband just might find his own way to changing his life by watching you change yours.


 


thyroid disease
I have hypothyroidism and take Unithroid.  I'm up to 150 mcg a day.  The only thing I am sensitive to is hot and cold.  My internal thermostat does not work well.  No medication sensitivities though, but that does not mean much as each person is different.  We all reactive diferently from each other.  Good luck though.  Hope things improve with this.
Foot-in-mouth-disease

At one time or another we have all suffered from it.  Sometimes, things just pop out of our mouths before we have had a chance to edit them.  What was probably a poor attempt at conversation turned out to be an embarrassing situation for both of you.  Accept his apology and move on. 


A lifer here, too. It used to be called a disease!
That really freaked me out on hearing that diagnosis. Cysts and pain come and go - supposedly we are to avoid chocolate and coffee/caffeine. yeah, right! No way! I do not do breast self-exams, and was also instructed not to do them as well by my OB/GYNs and surgeons, as we will always find a lump and then freak out. I have yearly detailed mammos - dozens of shots for surveillance. Had a cyst aspirated now and again, and have always been fine. In my 50s now and have gotten used to it - not lazy about it, but just not so afraid. Information is power! It is a very common "condition", by the way! We are all in good company!
Polycystic kidney disease....
My husband was just diagnosed with this.  It is the mostly common inherited disease there is and many people don't know they have it.  It generally leads to renal failure later in life.  There is a new clinical trial beginning right now for a drug that is supposed to shrink the cysts.  This is the third phase and so far it has been extremely successful.  The clinical trial is at Johns Hopkins University in Baltimore.  Let me know if you need more info.
...going on here, including a few disease processes. nm
s
My thirst is Sjogren's disease! sm
I am always, always and forever chronically thirsty, but I don't have the polyuria to go with it.

I have dry eyes, dry nose (to a point where it is usually pretty full of scabs), dry mouth with caries at the gumline. I have gastroparesis and proctalgia fugax which often go with Sjogren's just like the rest of it. Dry skin and feeling like you are drying out from the inside out is part of it. I even get a nasty, clay-like sludgy feeling in my mouth and throat from my stomach being too dry to digest.

It is misery and even better than a gallon of water a day doesn't fix the dry feeling, but it keeps my kidneys from shutting down from being dry.

Lovely huh?
My 13 y.o. niece has just been dx with Grave's disease. Does anyone here have any info or sm

advice on what I can tell my brother about this? They are such a precious family. Brother visibly upset over this because he has been disciplining her for behavioral problems, etc., when all along it's been here thyroid. They want to do radiation right away to help shrink it? Or possibly remove thyroid altogether. She is so pretty. I spent the summer with them and yes, she did act diff. from other 13 year olds, looked very developed for her age (to me), and her eyes weren't bulging to me. I'm so glad they caught it today. It sounded like she was in the early stages of shock with fever, shakiness, etc.


Anyone with experience in this? Thank you so much.


Every woman in my family has thyroid disease...
and only about half of them are overweight, so that's just another excuse. You really need to stop blaming other people for your weight problems and take control of your own situation. I too have hypothyroidism, but I am a size 6 and was only overweight when I was eating unhealthy and not exercising. If you're really only eating one meal a day, I can guarantee this is why you can't lose weight! Your body is probably holding onto everything you eat because you're starving it!! You absolutely need to eat 3 (small) meals a day and 2 snacks. There's a book called The 3 Hour Diet that can really help you with what you should be eating, how much and how often. You sound like a very angry person and like you don't want accept that you're responsible for your own health. Honestly, you're not overweight because of what the government does or doesn't do, it because of what you're doing to your body.
And the scariest part is, they then carry this disease
among many others without even knowing and spread them around.
absolutely. its a disease, and a super prevalent one also.
.
Absolutely, it is a disease, but one that a person can recover from if they
have the desire to be sober. Unfortunately, there is no test to tell you prior to your first sip of alcohol that you area an alcoholic and will suffer from this disease and hurt everyone, including yourself. Fortunately, however, there are steps to recovery and, albiet it not a cure, it does not have to debilitate you. I am a recovering alcoholic and have been for 13 years. My recovery started with admitting my problem and taking the necessary steps to change and find other ways to deal with my self-esteem, problems and anxieties other than a drink. Since my recovery I have not only become "sober" but a much better person and very serene with my life, which of course has made a very producitve member of society and not "disabled." I think someone who accepts disability based on their alcoholism has not only accepted their fate, but accepted its consequences and not willing to change. I really think that is very sad.
I studied the disease back in 98 when diagnosed

and thank goodness for the web!!!  I continually get educated all the time from being online.  I love it.  Glad you're feeling well!!!!  Attitude has much to do with it.....


Anyone with thyroid disease experience sensitivity

I have had thyroid disease for about 5 years now and am on Synthroid for it. I find that I cannot tolerate caffiene very well and narcotic/anlgesic medications, such as Novocaine make my heart race and make me feel so weirded out I can no longer tolerate this. I cannot even have a wisdom tooth pulled because of this.

Anywa, I thought it was just me but I recently read in a magazine that thyroid disease could cause sensitivity to medications. It would stand to reason once your thyroid levels were adjusted this would go away, but such is not the case with me. Does anybody else have this problem?


If you have a child with a life threatening disease
you possibly would think a little different about this issue. I do and saying full steam ahead.
Thank you for sharing that. Yes, thyroid disease left untreated can sm
be a very serious thing. I appreciate your response. Good luck to you!!
My daughter has hand, foot and mouth disease
She has 4 ulcers in her mouth and, of course, is in pain and won't eat anything. I put some cereal and milk in the blender this morning and she drank that okay, but her poor little mouth is really painful. We tried the saltwater rinses, but that didn't help. We have been using Orajel on the biggest sore, but was wondering if anyone has any other ideas for pain relief. She's been coping pretty good with the blisters on her hands and feet so far, but this is only the 2nd day. Hopefully, this will be over soon. Thanks for any help!
Incidental finding, polycystic kidney disease
Not something that I would have liked to hear but being as older, told the doctor maybe can outlive the cysts, i.e. having to be on dialysis and/or dying because of them. I had an MRI of another region and those picked up, told someone in my family had to have and know of no one. The cysts I have can go anywhere in your body so they will watch them every few months, no abnormal lab tests or the like, found those about 2 years ago. The kidney cysts are the only ones I know of.
Received a dx today of fibrocystic breast disease. Painful lumps in my breast. Going for a mammo
towards the end of the month. Anyone have any info on this disease?
You might want to check out the
New MT/Student board.  There are lots of posts there that would probably interest you like which schools are good and those sorts of things.  It is tough to get started unless you work on-site or are willing to take a cut in pay at first.  Good luck to you and congrats on the new baby. 
Well, what do you know?? Check this out
Maybe this would work with candles too!?!?

http://www.aromapatch.org/aroma.htm
Hmm...may have to check into that
is it very expensive (if you don't mind me asking) I'll have to go check out their website.  Thanks for the info!